• can@sh.itjust.works
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    2 months ago

    Using the most recent data from the Canadian Institute for Health Information on hospital bed costs (2016), Huska’s time at the Oakville hospital likely cost over $450,000 - ($3,592 per day for ICU care) with an additional 61 days in a ward bed which likely cost about $1,200 a day

    A liver transplant in Ontario is pegged at about $71,000 to $100,000 in Ontario based on data from 2019. “It’s a shame that so much money was spent keeping her alive under such horrendous circumstances and putting her family and her partner under such stress when the remedy was a lot cheaper and could have happened much, much sooner,” said Selkirk.

    The survival rate of patients with alcohol-related liver disease who receive a deceased donor liver transplant has steadily improved to reach 80–85 per cent at one year after a transplant.

    Can anyone make this add up?

    • exanime@lemmy.world
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      2 months ago

      Or maybe read the article?

      Occasional alcohol use won’t put you in this situation (hopefully you’ll never be in this situation for any reason)

      However, of the reason you need a liver is that you wrecked your own with booze; you are unlikely to get another one

      • LifeInMultipleChoice@lemmy.dbzer0.com
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        2 months ago

        Same for all the people who eat nuts and get hospitalized as well, pull the plug right? I mean come on, they are lesser humans as we stand on our pedistals and look down on them. /S

        Genetics play a huge role in liver diseases. 85% of liver replacements don’t come from alcohol. Alcohol in sure is bad for you, but it really is a high horse scenario.

        • sazey@lemmy.world
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          2 months ago

          Any source on your assertion of 85% of liver transplants not being due to alcohol? May it be because people with livers blown due to alcohol use would be at the bottom of any transplant list?

          • LifeInMultipleChoice@lemmy.dbzer0.com
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            I originally was reading studies performed in Australia that the U.S. pitched money to help the studies be larger, they took place around 2012, but here is more information from 2020 where you can see that it say “An estimated 10% to 15% of heavy drinkers progress to cirrhosis after decades of heavy alcohol use.”

            Now cirrhosis isn’t the only liver impact that can come from drinking, but my point was that a lot of our “trashing their livers” view is likely because we look down our nose at drunks. Sure they added to it but we aren’t refusing heart transplants to 30 year olds because they drank Pepsi, when we know just as well added sugars/corn syrup does nothing but “trash their hearts.”

            https://news.va.gov/82545/genetic-risk-alcohol-related-cirrhosis-uncovered/

            I’ll have to find the Australian government article about the 15% being replaced later. I don’t keep search history, auto-deletes

            • sazey@lemmy.world
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              2 months ago

              Nah you’re good mate, I take your point. ‘Only’ 10-15% of problem drinkers go on to develop cirrhosis and not a hundred percent of them will go on to trash their livers. You also make a good point about heart transplants not being denied to the obese for example. Today I learnt.

      • explodicle@sh.itjust.works
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        2 months ago

        I didn’t see in the article if she self-reported alcohol use, or was tested. I’m responding to the comments here about self-reporting.

        • exanime@lemmy.world
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          2 months ago

          She had been an alcoholic since teen years and repeatedly tried and failed to quit

          To clarify, I am NOT saying she deserved no healthcare. But donor livers (any organs actually) are a really really scarce commodity. This is why she would not get one

          If we had artificial livers (for example), of course she should have received one

            • exanime@lemmy.world
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              2 months ago

              Omg, again this is like the third time it was posted

              The boyfriend cannot give a full liver because he would die. Living donors can only donate a part of the liver. Unfortunately her liver was too far gone and she required a full cadaveric transplant.

              Basically the docs saved the boyfriend from losing 1/3 of his liver for nothing

    • TimewornTraveler@lemm.ee
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      2 months ago

      Lying about substance use to a confidential healthcare provider is not going to do you any good. If you have drank so much that you are having liver failure, they will know you are lying. If you haven’t drank that much, what’s the purpose of lying? To perpetuate the addiction?

    • finitebanjo@lemmy.world
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      2 months ago

      According to the Summary Statistics provided by Canada at THIS LINK, Notably Tables 2A and 2D.

      473 were simultaneously on a wait list in December 2023 and either 7 or 8 of them died awaiting transplant.

      So I’m not saying it’s murder or anything, just that in order to prolong your selfish existence you’re directly responsible for the death of another. You’re an adjacent-murderer.

      But it’s impossible to know how many livers are or are not available at any given time, so absolutely a little morally ambiguous.

  • IndustryStandard@lemmy.world
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    2 months ago

    Somehow I read the article thinkingshe had a kidney problem which we have two of.

    How can her boyfriend even donate his liver? Wouldn’t he die?

    • Leate_Wonceslace@lemmy.dbzer0.com
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      2 months ago

      Something interesting about the liver is that we can regrow it. So it might be possible to take a portion of a liver, put it in another person, and then both those pieces grow into a full or well-enough-functioning liver. I’m not a physician and I don’t know if such a procedure has ever been attempted.

      • areyouevenreal@lemm.ee
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        2 months ago

        I believe that’s an established procedure. Both the donor and the recipient regrow full livers from the portion they have. You can only donate once though because of how the new liver tissue is structured. I believe the arteries in the new one aren’t in the same place.

      • clickyello@lemmy.world
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        2 months ago

        maybe this is a joke going over my head but you just described a liver transplant. what blew my mind was learning that they don’t take the old liver out, they just squish the new one(the healthy liver sliver if you will) in and let it do it’s thing

        • Leate_Wonceslace@lemmy.dbzer0.com
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          2 months ago

          My understanding is that’s the case with kidneys as well. If there’s enough room, they don’t bother removing the old organ because that just introduces more chances to make a mistake.

      • weew@lemmy.ca
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        2 months ago

        That would be nice if we had an unlimited supply of livers to transplant. Give everyone a chance.

        Unfortunately I’d still rather give whatever liver we have on hand to someone guaranteed not to wreck it immediately, because giving her a chance means taking away someone else’s.

        • JamesTBagg@lemmy.world
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          2 months ago

          No, not in this case, they weren’t taking away someone else’s chance. But you didn’t read the article. Her boyfriend was a match and wanted to donate part of his liver. Donar A wanted to give to recipient B, there was no recipient C losing out. It was a closed loop.

          “No amount of determination from the (partner) could bend the decision,” said the physician. “There was no process for a second review or appeal. Just a harsh finality … goodbye.”

          She many have not even been the drunkard you all are assuming she was. If you go out once a month, and have 3 or 4 beers, you’re not eligible for a liver transplant. That’s ridiculous. You may not drink the other 30 days of the month, but that one Saturday ruined it for you; you die.

          A life was forfeit, because some bean counters in white coats -probably not teetotalers themselves- deemed her not worthy. Even though it cost more to let her die,

          Using the most recent data from the Canadian Institute for Health Information on hospital bed costs (2016), Huska’s time at the Oakville hospital likely cost over $450,000 - ($3,592 per day for ICU care) with an additional 61 days in a ward bed which likely cost about $1,200 a day

          A liver transplant in Ontario is pegged at about $71,000 to $100,000 in Ontario based on data from 2019.

          • LustyArgonianMana@lemmy.world
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            2 months ago

            Her partner is the one saying she had an alcohol substance use issue. It’s not “assumed” she was a drunkard, he stated it. I agree she should have been given the liver- she quit alcohol, she had a donor. We shouldn’t punish people with alcohol use issues by killing them.

            • CileTheSane@lemmy.ca
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              2 months ago

              The liver wasn’t thrown away, it was given to someone else. The liver still saved a life, unfortunately it wasn’t hers.

              Unless you’re talking about the boyfriend’s liver, in which case the doctor determined her condition would not survive a partial transplant, and the attempt would just kill her sooner.

              • LustyArgonianMana@lemmy.world
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                2 months ago

                I was talking about the general disturbing nature of determining organ transplants, yes I know re: the live donation from her bf

                • CileTheSane@lemmy.ca
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                  2 months ago

                  So again: The liver wasn’t thrown away, it was given to someone else. The liver still saved a life, unfortunately it wasn’t hers.

                  Imagine being the person denied a liver because they gave it to someone with a chronic alcohol abuse problem to “give them another chance”.

          • weew@lemmy.ca
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            2 months ago

            Cutting out someone’s liver to transplant isn’t easy nor risk free. You are risking death to have a low probability of saving someone. It doesn’t matter if they are volunteers.

          • exanime@lemmy.world
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            2 months ago

            That is because her boyfriend could only give her a partial transplant (he cannot donate his whole liver) and the doctors did not think it would work as her liver was too far gone to recover with a partial transplant

            The rest of your comment is so far from reality or logic, I’m not going to bother addressing it

      • exanime@lemmy.world
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        2 months ago

        I completely disagree. People should be able to make mistakes.

        You are allowed to make mistakes… What you are not allowed to do is skip the consequences

        It’s not like you can pick a liver at Walmart and give it a try. That liver could save someone else, giving it to an alcoholic is likely to only buy her a tad more time untill she relapsed

      • healthetank@lemmy.ca
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        2 months ago

        Medical notes suggest she started drinking in her late teens and had tried – unsuccessfully – to quit. After periods of sobriety, she returned to alcohol, which could increase the risk of continued use after the transplant.

        Allen says Huska registered for an addiction program early on in her hospital stay to stop drinking after she’s discharged. Hospital records also say she suffers from anxiety.

        From the first article CTV made about this, linked in in the first sentence they posted. Seems like we need to actually fund mental health care in this country or something, because she’s obviously been struggling for a while. You can see how the board would weigh previous failed attempts to quit against her.

          • healthetank@lemmy.ca
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            2 months ago

            Lol I quoted something from not just this article, but a second article they link to from the one above, but sure.

            They blocked her, at least in part, because she was an active alcoholic who had not shown any signs of changing her behaviour outside of time inside the hospital. Something that would have weighed on their decision included medical information such as previous attempts to stop drinking. Mental health care, including healthcare for addictions, is lacking in Canada. You can’t force someone to go into rehab, but offering better care and options might have helped her in the past.

            As said in the main article as well as the one I read, in order to qualify for a living donation you need to qualify for a full donation, because if something goes wrong you’ll need a full liver ASAP and get bumped to the top of the list.

    • theluckyone@lemmy.world
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      2 months ago

      Did you bother to read the article? Her partner was a match, and could have donated a portion of their liver to her, if approved, as opposed to a donated liver.

      Judge someone all you want for their previous life choices, but the decision referenced in this case should have been between the two of them and their doctor.

      • TimewornTraveler@lemm.ee
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        Yes, I read the article three times over, trying to chase down false info someone posted in here. His offer is irrelevant. The prognosis was not good enough for him to donate. They only included it in the article for the melodrama. It’s nothing more than an “I would die for her!” moment. Well, I’m glad the medical board did not condone assisting him with suicide.

        • theluckyone@lemmy.world
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          2 months ago

          Please quote the article where it states her prognosis was not good enough for him to donate. All I’m seeing is a statement that her prior alcohol consumption was a factor in that decision.

      • exanime@lemmy.world
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        2 months ago

        Did you bother to read the article?

        Did you? Her liver was so far gone, doctors did lot believe a partial transplant would work

        • theluckyone@lemmy.world
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          2 months ago

          Second paragraph in: 'However, documents show the Alcohol Liver Disease (ALD) team at UHN rejected her in part because of “minimal abstinence outside of hospital.” ’

          The article quotes Dr. Jayakumar making a general statement regarding alcohol diseased livers, but the University Health Network declined to comment on Amanda’s specific case outside offering their (patronizing) condolences.

          Feel free to quote the article and back up your statement.

          • exanime@lemmy.world
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            “minimal abstinence outside of hospital.”

            This means she kept on drinking while not hospitalized

            The rest is standard boilerplate, they can’t speak about her detailed case in public

            • theluckyone@lemmy.world
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              I’m sorry, maybe I’m just daft this week, but I missed the concept “the doctors believed her liver is so far gone, a partial would lot [sic] work” in that.

              I quote: “Huska, he said, stopped drinking as soon as she was diagnosed with Alcohol Liver Disease on March 3 and had also registered for an alcohol cessation program to begin once she was discharged.” So where does the article state she kept drinking while waiting for the transplant?

              • exanime@lemmy.world
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                I’m sorry, maybe I’m just daft this week, but I missed the concept “the doctors believed her liver is so far gone, a partial would lot [sic] work” in that.

                This was posted like 5 times and I assumed it was the same article… I’ll find the link to the original one where they detailed this. In any case, she was not eligible because she was likely to go back to drinking and ruin the new liver…

                So where does the article state she kept drinking while waiting for the transplant?

                I never said that… what the article says is that she was an alcoholic since late teens and was never able to stop. She literally only stopped drinking after she found out she was going to die, and that was only like 3 months. She tried to quit before but never succeeded… that tells you she was a super high risk of relapsing

                • theluckyone@lemmy.world
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                  2 months ago

                  “This means she kept drinking while out of the hospital”, which directly contradicts the statement by the boyfriend saying she stopped drinking.

                  Everything else is like, your opinion, man.

  • Maeve@kbin.earth
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    2 months ago

    Using the most recent data from the Canadian Institute for Health Information on hospital bed costs (2016), Huska’s time at the Oakville hospital likely cost over $450,000 - ($3,592 per day for ICU care) with an additional 61 days in a ward bed which likely cost about $1,200 a day A liver transplant in Ontario is pegged at about $71,000 to $100,000 in Ontario based on data from 2019.

    I’ve come to the realization the only ones getting us off the dark timeline is us. I’m in USA, ready and willing. Thinking through what beginning steps I can take.

    • Otter@lemmy.caM
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      2 months ago

      I didn’t like the cost section, because it felt simplistic. The actual procedure might be “cheaper”, but it doesn’t take into account the long term costs if something goes wrong with the “cheaper” option. Living liver donation is different from say a kidney, you’re taking a part of someone else’s liver.

      “The sicker someone is, the more they benefit from getting an entire liver from a deceased donor, as opposed to part of the liver from a living donor,” said Dr. Saumya Jayakumar, a liver specialist in Edmonton and an Associate Professor in the Faculty of Medicine & Dentistry at the University of Alberta.

      “On the off chance their (living) liver doesn’t work, they urgently get listed for a deceased donor,” said Jayakumar. "We need to make sure that everyone who is a candidate for a living donor is also a candidate for a donor graft as well, " she added.

      I worry people are going to see those numbers and run with them, even though there’s more to consider than that. Financial calculations in medicine are always difficult, and it feels dirty no matter what

      • pbjamm@beehaw.org
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        2 months ago

        The article is not clear. Is the $71k price listed the cost of the surgery itself or surgery + hospital stay?

        If it is just surgery then it is a very unfair comparison since the ICU stay would have been needed in either case, and at least some of the days in the ward for recovery.

      • healthetank@lemmy.ca
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        2 months ago

        So some rough numbers I found from places online for rough estimates. Also, the link the article has for bed costs is actually to a study on liver transplant costs.

        On average, 25 days in hospital between pre/post transplant. Of that, seems like a few days (varies by person) is in ICU. So thats 50 days of beds for the two of them, with say a week of combined ICU time.

        Plus two surgeries - the article only takes an average cost of liver transplants, which is not indicative of a second surgery needed for a living donor transplant.

        That puts the cost up to ~240,000-300,000. That cost is close enough that I can see it not being a factor for the decision.

  • ZC3rr0r@lemmy.ca
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    2 months ago

    It’s incredibly sad to hear someone die of a preventable cause this young, but I can also somewhat relate with the people who reviewed her application.

    If a living donor wouldn’t have been sufficient, they’ve now created two patients where they previously had one, and without improving the primary patient’s condition. It makes sense that a donor organ from a deceased donor would be preferable.

    That said, the current requirement for the patient to meet deceased donor standards for transplantation to be eligible to use a willing living donor make no sense. Both situations should have their own unique criteria, given that a living donor situation involves different risks for both the patient and the donor than a deceased donor situation would incur.

    Ultimately this whole situation boils down to a scarcity situation though. If we want to solve this, it will require more people to register themselves as a donor and a review of the eligibility criteria as soon as more donors are available.

      • Nik282000@lemmy.ca
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        2 months ago

        It’s not just acceptable, it’s encouraged by the province to keep people from rage quitting their lives here.

    • Fleur_@lemm.ee
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      2 months ago

      Honestly I find that the opposite of grim, I wish more problems were solved in a cold and calculated way.

      • VirtualOdour@sh.itjust.works
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        2 months ago

        Like killing disabled people because it’s cheaper, farming slaves to provide cheap labour, that sort of thing?

        There a good reason we tend to prefer the more humane and emotionally guided solutions over the mathematically most efficient.

  • honeybadger1417@lemmy.world
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    2 months ago

    I donated a kidney to a friend earlier this year. The reason his kidneys failed wasn’t anything he was at fault for, but even if it had been because of poor decisions he’d made in the past, I still would have given him one of mine. Because people deserve second chances. I can understand not wanting to give a recovering alcoholic a deceased donor’s liver, when someone else could receive that liver, instead. But this woman’s partner was a match and was willing to donate to her. What’s the harm in that? That isn’t a liver that could have gone to someone else who needed it. It’s a donation that would have either gone to her or no one else. No one could have lost out of the donation had been carried out. This was just cruelty, and now someone is dead. And for what? Because there’s a 15% chance (according to studies the article mentioned) that she might have started drinking again???

    • Breadhax0r@lemmy.world
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      2 months ago

      It’s not super clear, but the article makes it sound like if a partial graft from a live donor fails, then the recipient is automatically fast tracked for a new transplant from a deceased donor.

      If that’s the case then maybe policy should be changed in the case of alcohol abuse.

      • CommanderCloon@lemmy.ml
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        2 months ago

        The policy isn’t there just to be extra nice, it’s because otherwise the patient dies without a liver.

        Since she was too sick for a partial liver transplant, and not eligible for a dead donor full liver transplant, she would have just died.

        It might seem cruel but the same is done for a lot of other procedures; if the chance of you dying in surgery is way too high, doctors won’t take the risk, they’re not executioners.

        It’s not a moral judgement about her alcoholism, the same would have been true if she had a cancer no surgeon would take on.

      • Brekky@lemmy.world
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        2 months ago

        In the article, it shows that the hospital spent significantly more slowly letting her die than the average cost of the transplant.

        • n2burns@lemmy.ca
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          The comparison is apples and oranges. They only include the cost of the surgery itself, not the cost of after-surgical care, the potential cost of complications to both the patient and the donor, etc. Then there’s the cost if the partial liver donation doesn’t take, or if the patient relapses.

          Obviously, there’s also a lot of potential upside to having the patient survive, I just don’t think the odds of that were all that high.

  • HelixDab2@lemm.ee
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    2 months ago

    I’ve known entirely too many alcoholics that have had too many wake-up and come-to-Jesus moments, only to go back to drinking as soon as the immediate crisis is over. Change only comes when the alcoholic wants to change for their own reasons, not due to external factors.

    Livers are a limited resource. Wasting a donor’s liver on a person that us unlikely to stop drinking–despite their protestations–means that another person doesn’t get one. It may seem like a cruel calculus, but it’s the only reasonable way to ration a scarce resource. It doesn’t matter if alcoholism is a disease, or you think that it’s a moral failing; the end result is the same.

    • chryan@lemmy.world
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      2 months ago

      This was my initial opinion until I read the whole article.

      “I got my blood tested, I had MRI scans, I had a CT scan, I had ultrasound and blood compatibility test with her. I was a match,” said Allan.

      Transplant guidelines in Ontario and much of Canada require patients with ALD to first qualify for a deceased donor liver. If they don’t meet that criteria, they aren’t considered for a living liver transplant, even if one is available.

      Her partner was a willing donor, wanted to give her his liver and was prevented from doing so. So yes, this is a cruel take.

      • HelixDab2@lemm.ee
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        2 months ago

        As someone else already pointed out, if the transplant from the living donor failed or had complications, now you have two people that need livers. It puts a healthy person at risk for a very low chance of a positive outcome. If they were paying out of their own pocket, then I’d say sure, go ahead, blow your own money on it, risk your own life and health. But they aren’t.

      • idunnololz@lemmy.world
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        2 months ago

        If you keep reading it gives a reason why this is a requirement. Now whether you agree with the doctors or not is up to you but there is at least a reason for this.

        But doctors say that people with severe liver disease from alcohol use may need more than just a partial living liver donation to thrive.

        “The sicker someone is, the more they benefit from getting an entire liver from a deceased donor, as opposed to part of the liver from a living donor,” said Dr. Saumya Jayakumar, a liver specialist in Edmonton and an Associate Professor in the Faculty of Medicine & Dentistry at the University of Alberta.

        “On the off chance their (living) liver doesn’t work, they urgently get listed for a deceased donor,” said Jayakumar. "We need to make sure that everyone who is a candidate for a living donor is also a candidate for a donor graft as well, " she added.

        From this, the reasoning appear to be this: there is a high risk that the living liver transplant will not take. In this case the patient may be at risk of dying instantly and thus need another liver transplant. Since the candidate doesn’t not qualify for this other transplant, in the case where the transplant does not take, the patient will die instantly. This is in contrast with the patient being terminally ill however given time to live out the remainder of their life.

        • wise_pancake@lemmy.ca
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          2 months ago

          I guess then the question should be is that worse than definitely dying now, and where does this cross into the patient having the right to request their own treatment?

          I will always defer medical guidance to medical professionals, I know nothing in comparison to them.

          • Lumisal@lemmy.world
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            2 months ago

            It is worse.

            If the living partial liver doesn’t take hold, it does off and becomes necrotic, and would need another surgery to take out or it’ll become necrotic and they’ll die of sepsis. It’s also unlikely they’d survive such second surgery, due to the already existing liver failure + first surgery trauma.

            In this case, you’d be asking doctors to directly kill the patient in a more painful way for a very tiny chance that it may save them, on top of if they do survive, assuming they don’t relapse into alcoholism and die anyway. All while technically injuring someone else (the live donor).

            • wise_pancake@lemmy.ca
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              2 months ago

              Thank you, that does sound like an awful way to die.

              I try to never assume I’m smarter than others for seeing the “obvious” path. I had a coworker in another department once call me out for saying “why don’t you just” and it’s stuck with me since.

        • LordGimp@lemm.ee
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          2 months ago

          This is a bunch of CYA from the hospital that got a woman killed. The article talks about how transfer success rates are up around 80-85%. That’s just for the 6% of people who magically fit through all the “qualifications” the hospital has decided determine whether you get to live. This lady had a doner tested and lined up, but was rejected on the “off chance” (read: low probability) that IF the transplant failed, she would almost certainly die without an immediate whole liver transplant. So the fuck what? Her options were to maybe die from surgery or absolutely 100% die an agonizing slow death from liver failure. The hospital took away her ONLY chance at life. This is murder by committee and I hope the estate sues the entire hospital into the ground.

            • LordGimp@lemm.ee
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              2 months ago

              Is a 15% chance of death during the surgery lower than the 100% chance of death if she doesn’t get the surgery?

              Yes. Yes it is. It is THE lowest possible chance of death she had among her remaining options.

      • OsrsNeedsF2P@lemmy.ml
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        2 months ago

        Question: are there any countries where this is allowed? Would they have been able to go abroad and do this operation?

        • chryan@lemmy.world
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          2 months ago

          I don’t know enough to be able to answer your question.

          However, even if you did find a country you could do this in, you’d have to deal with the cost and time required to travel there, consult with the local doctors, get the surgery scheduled, perform the surgery, and remain for post-op care - all of which would be likely out of their own pocket.

          Canada has universal single payer health care system and I have no idea how they deal with medical procedures done outside the country. I highly doubt they would cover unless they were on private insurance that allowed it.

          Not everyone has the means to do what you suggest unfortunately.

    • seathru@lemmy.sdf.org
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      2 months ago

      Her partner was willing to be a donor, it wasn’t taking a liver from someone else on the list. So while you may be correct; That argument is moot.

      • Nik282000@lemmy.ca
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        2 months ago

        Healthcare is for profit. Doctors, nurses, surgeons, consumables, hospitalization, antibiotics, follow ups all get charged to OHIP at a profit for the healthcare provider.

        If we had actual public healthcare, where hospitals and doctors are not private businesses, maybe we could spend more mony on treatment and rehabilitation for problem cases.

      • HelixDab2@lemm.ee
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        2 months ago

        IIRC, there are ongoing experiments with organs are being grown in cloned animals; the animal is slaughtered, and the organ is harvested. Maybe someday they’ll be more readily available and renewable than they are now.

        …At least for the wealthy that can afford to have farms of cloned animals.

        • chingadera@lemmy.world
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          2 months ago

          It will always be insane to me that today’s rich people would rather be less wealthy as long as they are more wealthy than everyone else as opposed to being even more wealthy with everyone else if we all just worked together and had the freedom to create and be innovative.

  • radicalautonomy@lemmy.world
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    2 months ago

    My cousin was a raging alcoholic. He got clean, but not before he fucked his liver right up. I don’t know if they even allowed him on the liver transplant list or not, but if he was, he was very low on it. He died in early 2015 at the age of 43.

    • humble peat digger@lemm.ee
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      2 months ago

      Wait, so if someone was ever an alcoholic - they gonna be denied? Even if they stopped drinking for many years?

      • Lumisal@lemmy.world
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        2 months ago

        In most places, if they’ve been clean for 6 - 12 months, they are no longer considered alcoholic in terms of transplantation. Similar to Canada

        • i_love_FFT@lemmy.ml
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          2 months ago

          Notice that they never state she was an alcoholic. They also never atate she was a “high level” alcohol user. Just that she was an alcohol user.

          You can make your own assumptions about her alcohol use, but in general these rules would also excluse a “normal” alcohol user with a congenital liver failure…

      • buddascrayon@lemmy.world
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        2 months ago

        She literally quit when she was told she had a failing liver that could not recover. Just to be clear, there is absolutely no way in hell that she didn’t know she was on the way to killing her liver with her drinking because there are a plethora of signs long before you get to the point where alcohol has destroyed your liver beyond its own ability to repair itself. (Which is incredibly prodigious. The liver is the single most regenerative organ in the human body)

        So forgive me if I’m skeptical that she really would have stopped being an alcoholic after she received a liver transplant.

        IMO this was a tragedy of her own making and the money and effort in transplanting a liver would have been a complete waste. (Even one offered by her SO.) Especially when there is such a deficit of available organs and the surgeons who do the transplanting are needed for patients who aren’t likely to go back on the sauce 6 months later.

        • addictedtochaos@lemm.ee
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          2 months ago

          the pain of a cramping liver is excrutiating. if you deal with that kind of unrelenting never stopping pain und don’t stop drinking, you are addicted for sure.

      • SulaymanF@lemmy.world
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        2 months ago

        Doctor here who has referred patients for transplant. No. You must be six months sober to be eligible for the transplant list. There’s so few livers to go around, they need to be sure the recipient isn’t going to just break the next one.

        It’s rare to suddenly need a liver; they usually take months to fail and this gives the patient and doctor months of notice to try treating the failure first (including lifestyle changes and meds) before getting sick enough to go apply for a transplant.

        • sailingbythelee@lemmy.world
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          2 months ago

          I used to trust HCPs, but I know many of them now and have heard them shit-talk and judge their patients for mental health issues and drug use (among other things). I would NEVER, EVER tell a doctor or nurse about any form of drug or alcohol use now, or any kind of anger issues that could possibly be interpreted as aggressive. Especially not in a hospital where everything gets recorded in an electronic chart and may be used against you in the future. Fuck that.

          • SulaymanF@lemmy.world
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            2 months ago

            I’m sorry you have such a low opinion, maybe you heard someone venting about their job after work?

            You really think lying about your drug use is safe? It’s dangerous to give many types of anesthesia if you’re on drugs or alcohol. We don’t particularly care if you use or not, we don’t tell police or family, you just need to be honest so we can do our job correctly.

            • sailingbythelee@lemmy.world
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              If I was going under anesthesia for a planned procedure, I would not drink or use drugs beforehand. If it was an unplanned emergency, I guess it would depend on the circumstances, but you are citing an extreme circumstance. If someone is actively high at the time they end up in the emergency department, well, that’s bad luck and it might be wise to disclose since the staff will figure it out pretty darn quick anyway. Same if you are a severe alcoholic or opiate addict. That’s not what I’m talking about, though. I’m talking about when doctors or nurses ask you about it as a lifestyle question.

              You know as well as I do that the health care system classifies people in terms of their risk factors and then use that profile to make decisions about you. Once classified as a “drug user” in your chart, many doctors and nurses will treat you differently. They may or may not “care” from a moral perspective, and we know that they won’t tell family or police, but that won’t necessarily stop them from denying you necessary pain relief or deprioritizing you in triage. That’s the actual concern.

              There is absolutely no reason to tell a doctor if you use cannabis or engage in moderate alcohol use or occasionally use cocaine, LSD, or psylocibin. If you are prescribed a medication that has an interaction with a recreational drug, the doctor can simply tell you that. They don’t need to know if you use that drug from time to time. Only you, the patient, need to know that so you can avoid the interaction. More extreme forms of drug use are a different story, of course.

              Edit: Let me add one other overarching point. I think people are sick and tired of having doctors make decisions for them. I don’t need a nanny. I need information about risks and benefits in order to make an informed choice. Doctors rarely do that. Instead, they decide what should be prescribed, or not prescribed, regardless of the patient’s wishes. I know the reason is fear of liability, but here we are nonetheless.

              • SulaymanF@lemmy.world
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                2 months ago

                Ah, you think you know better than doctors. Many people think this. Many have bad outcomes with nobody to blame but themselves.

                I don’t care if you use cannabis, heck I can legally prescribe you some if you need it. Doctors are not law enforcement. I don’t bat an eye if you tell em you use cocaine, I’ll still give you morphine after surgery but I need to know you used cocaine so I can avoid beta blockers. You’re paranoid we’re judging you but you’re wrong. You’re not as rare as you think. We know you’re in pain regardless of your drug use and treat you anyway.

                Only you, the patient, need to know that so you can avoid the interaction

                Many idiots who died in hospital thought that too, which is why we make you sign consent forms so that your family can no longer sue us for your stupid mistake.

                It’s like you have no idea how doctors work and have an outdated idea of them. Your loss.

                • sailingbythelee@lemmy.world
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                  2 months ago

                  You misunderstand me. I don’t think I know better than doctors. Far from it. What I want from a doctor is information and informed choice, not a gatekeeper who makes decisions for me. As a group, physicians have been slow to adopt the patient-centered informed choice mentality that, for example, nurse practitioners and midwives have more thoroughly adopted.

                  The fact that you’ve doubled down here on calling patients idiots for being somewhat distrustful of the typical arrogant physician attitude confirms what I’m saying.

        • areyouevenreal@lemm.ee
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          2 months ago

          Their boyfriend was willing to be a living donor for them. So you aren’t talking about a scarce resource here.

    • johannesvanderwhales@lemmy.world
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      2 months ago

      And for good reason, really. The supply of livers is too small to save everyone who needs them, so they give them to the people most likely to have a successful outcome. Basically every lived given to one person is sentencing another person to death. That’s just reality with supply being what it is.

  • yannic@lemmy.ca
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    2 months ago

    The provincial governments in charge of our single payor health care system made the conscious decision to keep the liquor marts open while banning in-person sales of tea kettles (and we call ourselves a commonwealth nation!) during a pandemic.

    I think our single payor at least partially did this to themselves.

    • jonne@infosec.pub
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      2 months ago

      I’m pretty sure people would’ve stormed parliament if you banned alcohol sales.

  • Nuke_the_whales@lemmy.world
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    2 months ago

    Selkirk said she and Allan are both discussing a legal challenge to the liver transplant guidelines for those with alcohol use disorder “with people who have their own living donor.” “It’s not fair and it’s not right, and hopefully we’ll change that policy,” Selkirk said.

    Even if her apartment could donate his own liver, it should still go to a better recipient. If anything he should be donating anyways to honor her and save a life

    • Skates@feddit.nl
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      2 months ago

      You (or the committee of doctors) don’t decide who is a better recipient for my goddamn organs. You can make whatever the fuck ethical decision you want when I’m dead, but not until then. And I’ve gotta say, it’s shit like this - treating patients & donors like you know better - that make me not want to be a donor anymore. If I wanna donate my lungs to Hitler because he’s my grandpa and I love him, that’s not something you get to have a decision on.

      • andrewta@lemmy.world
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        2 months ago

        The fact that people are down voting you for saying in essence “my body, my choice”, is ironic for lemmy.

        • DefederateLemmyMl@feddit.nl
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          2 months ago

          my body, my choice

          It’s a bit more complicated than that with transplants. Should people for example be able to sell their kidney to the highest bidder? That’s also “my body, my choice”. And should doctors be forced to participate in such a scheme?

          A transplant system should consider fairness, equality and possible abuse. Obviously I think it should be possible to donate to a loved one, but we should also be careful not to create a system where the rich get priority, because they can pay more, and where poor people could be financially pressured to give up their bodily integrity by having to sell an organ.

        • AeonFelis@lemmy.world
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          2 months ago

          Not really. All political factions try to sound like they are about principles when in reality they are about tribes.

    • DefederateLemmyMl@feddit.nl
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      2 months ago

      Even if her partner could donate his own liver, it should still go to a better recipient

      That’s nonsense, because the partner would not donate his liver if it went to someone else.

      • JasonDJ@lemmy.zip
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        2 months ago

        Right? Like I would donate my liver to my kid, or my spouse, without even questioning it.

        But if the doctor told me they can’t have it (for some reason other than incompatibility), and they died? Fuck them. I’d de-register as an organ donor out of spite.

        • driving_crooner@lemmy.eco.br
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          2 months ago

          Donating an organ is a pretty invasive operation that can have a lot of complications, doctors aren’t only taking the recipient health, but the donor too, in the equation.

          • DefederateLemmyMl@feddit.nl
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            2 months ago

            We’re explicitly talking about a situation where the donor is suitable. So I don’t know what kind of information you’re trying to add here.

    • Notyou@sopuli.xyz
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      2 months ago

      Maybe he should, but maybe he is thinking “Fuck them, we tried to participate in the system. We had a living donor to go. What? Oh you have a ‘better’ recipient? Well, guess who doesn’t want to donate to a system that failed my loved one.”

      • Nuke_the_whales@lemmy.world
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        2 months ago

        The system didn’t fail, it worked as intended. If but mid 30s you’ve destroyed your liver with your alcohol addiction, it’s almost guaranteed you’ll slide back.

        Recipients can’t drink ever, and have to take meds for life. She was not a good candidate for a transplant.